Witness
the Reality

Report
on the HIV/AIDS situation in Malawi and other developing countries
“Come and
witness the reality of AIDS; see the devastation in our community; see the
fresh graves; see the courage of those who live with the infection and of
the children who have lost their parents. "
Nelson Mandela
INDEX
PREFACE.
2
INTRODUCTION..
2
GLOBAL
OVERVIEW ON THE EPIDEMIC..
3
Sub-Saharan
Africa..
4
MALAWI
INSIDE OUT..
4
Economic
well-being..
5
Agriculture.
5
Foreign investments.
5
Gross national product
5
Human
development..
5
Child and infant mortality.
5
Economically active population.
5
Energy.
5
Households.
5
Life expectancy.
6
Literacy.
6
Orphans.
6
Population.
6
Population density.
6
Sanitation.
6
Schooling.
6
Water.
6
Women rights.
6
Qualitative
elements of development..
6
OVERVIEW
OF THE EPIDEMIC IN MALAWI
7
Past..
7
Initial response.
7
1989-1993.
7
1993-1998.
7
Present..
8
HIV prevalence.
8
Division by age and sex.
8
Health care.
8
Area division.
9
Future.
10
National HIV/AIDS Strategic Framework.
10
2000-2010.
10
THE
IMPACT OF THE EPIDEMIC..
11
Children..
11
Communities.
11
Economic..
11
Families.
12
Health
care.
12
RESPONSE
TO THE EPIDEMIC..
12
Risk
and risk reduction..
13
Vulnerability
and vulnerability reduction..
13
Pathways
to expand the response to HIV/AIDS.
13
VULNERABLE
SEGMENTS OF POPULATION..
14
Children..
14
Mother-to-child transmission
(MTCT).
14
Women..
15
Men
who have sex with men..
16
Men in prison.
16
Sex
Workers.
17
Drug
Users.
17
RESOURCES
ON THE INTERNET..
17
REFERENCES..
27
Witness
the Reality
Report on the HIV/AIDS situation in
Malawi and other developing countries
In his monologue, Gray’s Anatomy
, Spalding Gray is facing a deteriorating eyesight and potential blindness. He
describes his initial reaction to the problem: “It was so terrifying that I
had no choice but to ignore it.”
Since it first came to attention in the early 1980’s,
acquired immunodeficiency syndrome
(AIDS
) has inspired much the same response.
Even though this deadly disease has been part of our
lives for two decades now, the level of ignorance, misinformation, and
disinterest we still hold about the human immunodeficiency virus
(HIV
) and the disease it leads to, is astonishing.
We cannot close our eyes anymore; we cannot ignore it -
not cannot stand as a bystander anymore. In order us to help our next
generations to have a life without the horrible presence of this disease our
duty is to finally start putting all our efforts into the fight against
HIV/AIDS.
This fight is not just for you to fight, we should join
our hands and efforts to become strong, vital and energetic unit to be able to
achieve our goals that we have set together.
The purpose of this report is not to give answers for
everything; it is not an encyclopaedia of HIV/AIDS or a handbook what we
should do. The purpose is to give a broad look at the current HIV/AIDS
situation in Malawi and other developing countries in general and raise
questions and ideas through the dilemmas that exist when analysing the
situation.
I hope that this report would work as a guide and
inspiration when you are considering engaging yourself in development work in
Africa or anywhere else in the world.
Who else than us can take the necessary steps? It is
we, who can show our support for those infected and affected by HIV/AIDS,
raise awareness among the public, demonstrate respect and compassion and
encourage other people to take steps to prevent HIV. We are here – we are in
the forefront and therefore we should act like it.
This report was written after 6 months of development
work in Malawi, Africa for Hope Humana People to People project affiliated to
DAPP (Development Aid from People to People) in Malawi.
“Witness the Reality” was written by Development
Instructor Kimmo Karsikas. The information in this report comes from variety
of sources.
January 2001, Malawi.
Two decades since the beginning of the HIV/AIDS
epidemic, a dual gap continues to grow relentlessly between the rapid spread
of the HIV epidemic and the limited prevention efforts as well as between the
rising needs for care, support, and impact-alleviation and the insufficient
response to these needs.
We have taken our first steps into the 20th
century and still, there is no cure in sight for this one of the most
frightening and devastating diseases the world has known. We should
acknowledge the fact that HIV/AIDS will be part of our lives for some time to
come; it will continue to affect the lives of millions around the world
including ourselves.
By the end of 1999, 33.6 million people were living
with HIV/AIDS, including 13.8 million women and 1.2 million children.
95 per cent of those 33.6 million people living with
HIV/AIDS were in the developing world. In many developing countries, the
epidemic has come to represent a threat to human security itself. It is
sparing no one; children, parents, teachers, health workers, farmers and other
active members of society are each taking their share.
Globally, young people – those who must build the
bridges, create national wealth and conduct the research of the future –
experience half of all new HIV infections. In many parts of the world, AIDS is
the single greatest threat to economic, social and human development.
In order, us to achieve results we have to make sure
that the very basic structures of living are in order. Even now,
discrimination is one of the most significant human rights abuses in the area
of HIV/AIDS.
Even in countries where one adult in ten – or as many
as one adult in four – is infected, a conspiracy of shame and silence
surrounds AIDS. People who are openly HIV positive often suffer rejection and
discrimination.
HIV positive people are being invisible in society
because disclosing one’s infection carries a risk of deprivation of full
civil and human rights. Social practices reproduce situations where the HIV
positive individual copes best by keeping silent about his/her infection.
Disguising one’s infection is not a sign of fear but a survival strategy;
the HIV positive person has a reason to be concerned at how the environment
will react.
The stigma surrounding AIDS makes our challenge
special. Even though sharing the knowledge of one’s status with the
community is hard, it is an effective way of teaching. Therefore, people
living with HIV have a special role to play in helping society to acknowledge
and tackle the epidemic. Through their experiences and lives, we have a change
to understand the true face of this epidemic.
We should try to encourage and give our full support to
those brave people struggling with their every day life to show an example and
come to the front and say; “I am HIV positive, I am not ashamed and I am
here to teach you”.
The easiest way we can do that is to share our
knowledge, which is perhaps our greatest and cheapest weapon in the fight
against HIV/AIDS and it can be shared free.
“AIDS is far more than a medical problem. AIDS
is far more than a national problem. AIDS is far more than over.”
Kofi. A. Annan
The rate at which new HIV infections are growing and
the pace at which HIV infection progresses to AIDS, have begun to slow down in
certain populations in some parts of the world. This is happening at the same
time as people adopt safer behaviour and prevention and care services are
expanding. Particularly richer countries owe the change to the availability of
antiretroviral therapies.
There is abundant evidence globally, that well-designed
prevention programs and other successful public health measures can reduce and
stabilize the epidemic. In societies where services and programs were already
well equipped before the epidemic of HIV/AIDS, the creation of new initiatives
and the re-orientation of others, led to a gradual decline in the incidence of
HIV. We can observe a similar trend in certain sections of the population even
in resource-constrained settings, at least partly because of rigorous
prevention efforts.
Nevertheless, the dynamics of the epidemic differ
strongly between countries due to virological, epidemiological and
socio-cultural factors, with continuing low prevalence in some of the northern
and western countries, stabilising epidemics in others and staggering
increases in many countries in the south.
Like many developing countries, which are experiencing
exponential growth of HIV/AIDS cases. At the same time global spending on
HIV/AIDS care, research and prevention reflects this disparity – developing
countries only receive about 12% of such resources despite having 95% of the
cases. In addition, the resources allocated to combat the epidemic are grossly
inadequate - AIDS is spreading three times faster than the funding to control
it.
In addition, the still visible public fear of HIV/AIDS
interferes with the efforts to fight HIV/AIDS. It further reinforces
stigmatisation towards people who, for social, racial, behavioural or any
other reasons, are alleged to be at higher risk of acquiring HIV infection.
This stigmatisation can limit the access to appropriate HIV prevention, care
and support for people who may be most in need.
5.6 million people were infected with HIV in 1999,
which equates to over 15,000 people being infected every day. Nearly half
these new cases were in young people under the age of 24 years.
Since the start of the epidemic, the cumulative number
of deaths due to HIV/AIDS is 16.3 million. It has left behind a cumulative
total of 11.2 million AIDS orphans.
More than 70 percent of HIV infections worldwide occur
through sex between men and women, and a further 10 percent through sex
between men. Another 5 percent or so take place among people who inject drugs.
The overwhelming majority of people with HIV – 23.3
million people – are living in the developing world.
Like the industrialized world, Africa is struggling
with an epidemic that is now entering its third decade. However, while a few
African countries have succeeded in stabilizing or reversing HIV infection
rates, the epidemic is out of control especially in the southern part of the
continent.
Socio-economic factors like poverty, illiteracy, gender
inequality, increased mobility of population and rapid industrialization
involving the movement of workers from villages to cities, are still
contributing to the spread of HIV/AIDS.
Today, when there are more than 20 million Africans
infected, the situation is almost catastrophic. The facts that there were over
two million deaths due to AIDS during 1998, including nearly half a million
deaths occurring among children and four million new infections last year,
prove that the epidemic is an unprecedented crisis for the continent.
In the most severely affected countries, a quarter of
the adult population is infected. Hard-won gains in life expectancy and child
survival are being wiped out. The AIDS-related suffering of individuals,
families, and societies is enormous. Education and health systems are
staggering under the burden as they lose trained professionals and incur
higher costs because of the epidemic.
In Africa, sex between men and women is the primary
mean of HIV transmission although in almost every country, there are also at
least a few cases resulting from sex between men. Transmission through the
injection of intravenous drugs is growing rapidly in Southern Africa and this
method of transmission is probably going to be relevant in other African
countries as well. Where screening of blood used for transfusions is not
efficient enough, transmissions through blood transfusions are still
occurring.
Approximately two thirds of people infected are living
in sub-Saharan Africa and half of them are women. The trend is that in
sub-Saharan countries, more women than men are infected and worldwide, women
are infected at a faster rate than men are.
In some countries in southern Africa, between 20-45% of
pregnant women are HIV positive and one million children are living with HIV,
while another twelve million have lost their mother or both parents. Life
expectancy is dropping to levels not seen since 1960; hard-won gains in child
survival are being reversed.
The burden of the health system is affecting the
quality of life of people living with HIV/AIDS. Health care is often very poor
as quality care; support to patients and their families are inadequate.
The epidemic is the greatest threat to Africa’s
social and economical development, it has spread beyond all predictions. It is
wiping out development gains achieved over many decades and is a threat to the
well-being and to the national development of countries.
Response to this should come from inside Africa as well
as outside Africa. If such a response, which should be more substantial than
before, is mounted quickly, tens of millions of deaths can be averted.
Governments, NGOs, local communities, the private sector and international
development organizations should all be part of this response.
Plans are not enough; national awareness, commitment
and mobilization should be raised to adequate levels. Successes should come
often and on a bigger scale to reverse the epidemic. External support should
be on a level where it belongs on a current situation and it should be given
as soon as possible without further hesitation.
Malawi is among the world’s poorest countries, its
Gross National Product per capita in 1995 was US$170. The depth of poverty and
disparity in wealth distribution, are increasing and poor Malawians feel that
they are getting poorer.
Malawi is also one of the most unequal countries. It is
densely populated, with a very high rate of forest loss and a fragile
environment. Economic prospects are poor. Women suffer continued
discrimination, and children’s rights are inadequately protected.
Educational attainment is low and poverty has been increasing over the past
decades.
In a poor country such as Malawi, HIV is an additional
burden, which is a cause as much because of poverty. On the one had, families,
businesses and communities are impoverished by the costs of widespread illness
and death from AIDS. On the other hand, lack of money makes it more difficult
to care for the ill, more difficult to mount effective education campaigns and
more likely that some women will exchange sex for money, food or shelter. In
the beginning of the new millennium, six out of every ten Malawians earns less
than 60 Kwacha a day.
Malawi’s economy is dominated by agriculture,
which is acutely vulnerable to drought. Agriculture contributes 90% of rural
employment. In addition, income and assets in Malawi are very unequally
distributes and 72% of households cultivate less than one hectare.
This, and the increased cost of inputs following
the removal of subsidies, means that the majority of households have not
benefited from the removal on controls on prices and the freedom to grow and
sell their own choice of crops. They consume more than they produce and have
to hire out their labour. Working for others means neglecting work on their
own fields at critical times.
Malawi attracts little foreign private
investment. This partly reflects its limited resource base, but rising crime,
poor physical and financial infrastructure, and procedural delays are other
inhibiting factors. Malawi will continue to face tough competition from its
neighbours, better endowed with natural resources and cannot expect foreign
investment to be a major force for early economic growth.
Growth in GDP has averaged 3% over 1992-1997. To
prevent the number of poor people rising will require growth above 5% per
annum for decades. Agriculture contributes 35% of GDP.
High mortality rate in Malawi is related to nutritional
status, which is related to access to land.
Poverty is an important determinant of the nutritional
status of children, which is deteriorating: 48% of children are stunted
(chronically malnourished) and half of those severely so.
Nutrition is however, a complex issue, involving lack
of basic health care or safe water, poor nutritional education, malaria, low
female literacy, and the heavy demands on poor mothers’ time as well as
inequitable land and income distribution.
Child and infant mortality
(at 133 per thousand the fifth highest in the world) remain appalling, largely
because of preventable and treatable infectious diseases.
There were about 6.8 million
persons aged 10 years or older. Of this total, around 4.5 million (66%) were
economically active. Of the economically active population, the majority (78%)
were subsistence farmers while 13 percent were employees.
94% of Malawians used
firewood as their main source of energy for cooking and 90% of them used
paraffin for lighting. Only 2% used electricity as a source of energy for
cooking and 5 percent for lighting.
Majority of households in
Malawi were male headed. Of the 2.3 million households enumerated in the
country about 69 percent were headed by males. Households headed by divorced
and widowed women are over-represented amongst the poorest.
Life expectancy, at 43 the
third worst in the world, is declining again after progress in the early
1990s.
8.3 million persons are aged
5 years or older. 4.8 million (58%) were able to read and write a particular
language.
Literacy rate increased from
42% in 1987 to 58% in 1998. Literacy rates among males and females stood at 64
and 51 percent respectively as compared to 52 and 32 percent for males and
females respectively in 1987.
There were about 5.7 million
persons aged 20 or less. Of these, about 5.1 million (90%) reported that both
their parents were alive. Furthermore, about 147,000 (3%) reported that their
mothers were not alive; 333,000 (6%) reported that their fathers were not
alive and around 88,000 (2%) reported that both their parents were dead.
There is a total population
of 9,933,868 or about 9.9 million. There were 4.9 million males and 5.0
million females. Population is divided into regions as follows, Northern
Region 1.2 million, Central Region 4.1 million and Southern Region 4.6
million.
Population density in 1998 was 105 persons per
square kilometre. The population density in the Northern Region was 46, in
Central Region 113 and in Southern Region 146.
Around 7.2 million (73%) of
the total population had access to traditional pit latrines while 2.2 million
(22%) had no access to any toilet facility.
Of the total population aged
5 years or older, 2.7 million or about a third had never attended any school.
Fewer girls than boys are in schools and it is reflecting to the literacy
disparity.
About 2.6 million (27%) had
access to boreholes as their main source of drinking water while 2.5 million
(25%) drew their drinking water from unprotected wells. A further 21 % used
either piped water or communal standpipes as their main sources of drinking
water.
While the Constitution
protects women’s position, women still suffer from discrimination under
customary law, particularly over inheritance and domestic violence, and face
steep obstacles in asserting their formal rights.
Women produce 70-80% of food
consumed in Malawi and make up 52% of the population, but are
under-represented in Parliament (5.6%), in decision-making positions or in the
Civil Service.
Multi-party elections were held in 1994 with
international scrutiny after which President Muluzi’s United Democratic
Front formed a minority government.
Democracy remains fragile: political parties are
regionally aligned, and society as a whole is still learning about the
democratic process. As a result, effective accountability is limited.
A new and sound Constitution was adopted in 1994.
Freedom of speech has become entrenched and the written media functions
largely without government interference, though the broadcast media are still
Government controlled.
Better governance is a prerequisite for faster
development. There are grave weaknesses in capacity to deliver on government
policies. AIDS is further depleting very limited human resources; non-salary
budgets are acutely constrained; and low salaries have led to an “allowance
culture”.
Corruption remains a concern for the Government. It is
still common for Ministers and officials to retain outside business interests.
The HIV/AIDS epidemic in Malawi is among the most
severe in Africa and in the world. Since 1985, when the first AIDS cases were
identified, the levels of HIV infection have progressively escalated from 17
people in 1985 to 53,575 until June 1999.
The causative agent for AIDS in Malawi is mostly HIV-1.
There is no evidence so far that HIV-2 exists in Malawi. However, efforts are
made to monitor HIV-2 in blood donors, particularly because Malawi had an
influx of refugees in the past few years from Mozambique, where HIV-2 is known
to occur.
The major mode of HIV transmission in Malawi is
heterosexual. Data on AIDS cases collected so far indicates that approximately
90% of cases are due to heterosexual transmission. About 8% of cases are
estimated to be due to mother-to-child transmission. The role of blood
transfusions and unclean needles etc. is difficult to determine. It may
contribute to the remaining 2% of the cases. Other modes of transmission, like
intravenous drug use, play a minimal role if at all in the transmission.
The impact of the epidemic in terms of illness and
death is now being increasingly felt. AIDS is a major determinant of life
expectancy in Malawi and is a major cause of death among those aged 15 to 49.
This has and will continue to adversely affect capacity building in the social
and economic sectors both public and private.
Most of the infected individuals do not yet know their
status. The already high infection rates seem to continue growing in spite of
the apparent high awareness of HIV/AIDS amongst the general population.
Even though the first cases of AIDS were confirmed in
1985, it is believed that HIV infections may have started in the 1970s.
Estimations of HIV prevalence were first made in 1985 at the Queen Elizabeth
Central Hospital. Back then the prevalence in women was estimated at 2%. By
1993, the HIV prevalence in women attending antenatal clinic had increased by
30.2%. Since then however, the prevalence seems to have levelled off, and was
31.8% in 1994, 32.7% in 1995, 34% in 1996, 30.8% in 1997 and 30.4% in 1998.
The reasons for the apparent levelling off the
prevalence are not clear. This could be due to increased AIDS specific
mortality rate as the epidemic matures and/or be related to reductions in new
infections.
The response that the government of Malawi had to the
epidemic since the first cases of AIDS were confirmed in the country in 1985
was:
A blood screening policy was implemented in two
major referral hospitals. In addition, government came up with a Strategy of
public education on HIV/AIDS.
The first Medium Term Plan (MTP I) was developed.
It continued implementing the blood screening and public education policies.
The counselling component, home-based care initiative, the involvement of the
private sector and religious organisations commenced.
MTP II underlined multi-sectored approaches and
incorporated social, psychological and economic dimensions in dealing with the
consequences of the epidemic.
The institutional framework for HIV/AIDS and STD
prevention became more complex, including the public and private sectors, the
NGOs, donors, religious organisations and community based organisations that
also included people living with HIV/AIDS.
An evaluation of MTP I and II established, among
others, the following facts – that:
q
In spite of high awareness levels – over 90%, little behaviour
change was evident in the population.
q
HIV incidence continued to increase unabated.
q
The National AIDS Control Programme (NACP) was still poorly
established.
q
There was over dependence on the health sector for the national
response.
These facts led to the establishment of the
Strategic Planning Unit (SPU) in the National AIDS Control Programme (NACP).
SPU’s directive was to develop a comprehensive national 5-year strategic
plan that would guide HIV/AIDS prevention, care and mitigation programs and
activities in the next plan period.
Since the first confirmed AIDS case in 1985 to June
1999, a total of 53,575 cases have been reported. However, this is believed to
represent only between 10-15% of the projected number of AIDS cases that may
have occurred so far. The NACP estimates that currently about 1 million people
may be carrying the HI-virus and close to 260,000 may have died of AIDS.
In 1999
q
760,000 Malawians were living with HIV/AIDS, that is one in six
of those between 15 and 49 years old.
q
40,000 children were infected.
q
390,000 children have lost their mother or both parents to the
disease since the beginning of the epidemic.
q
70,000 people died from the disease.
q
80,000 people were newly infected.
The impact of HIV/AIDS is made worse by the stigma
associated with the disease. Today, more people with the virus are open about
their condition, but stigma still exists, preventing adequate care reaching
those who need it and appropriate prevention messages reaching those who need
them. At the heart of the stigma of AIDS lies shame – the perception that
those with the virus have done something wrong for which they and their
families should be ashamed.
The HIV prevalence from the data collected from
antenatal clinic attendees gives an estimate of HIV prevalence in adults of
the reproductive age group only.
In 1998, conservative estimates set the HIV
infection rates in the age group of 15 to 49 years old at around 14%
nationally.
Using the HIV prevalence in the reproductive age
group, the distribution of AIDS cases according to age group and the
population distribution in various parts of Malawi, we get the national
estimate of 8.0% for 1998.
Almost all the adult cases are the result of
sexual transmission and almost all the children with the virus contracted it
in the womb or from breast milk.
More women (420,000) than men (340,000) are
HIV-positive. Women also tend to contract HIV at a younger age than men. One
in five women with AIDS develops the disease before they are 25, but only one
in twelve men develop AIDS at the same age.
Vulnerability in puberty is higher in younger
women who tend to have sex with older male partners. The older male partners
are at a higher risk of being HIV positive and therefore are likely to pass it
on to the younger sex mates.
The HIV infection in people aged 15-49 is
concentrated in younger age group so that 46% of all new adult infections in
1998 occurred in youth aged 15 to 24. 60% of those cases occurred in younger
females, which is 4 to 6 times higher than the infection rate in their male
counterparts.
The 1998 sentinel surveillance data indicated HIV
prevalence of about 20.4% in antenatal women aged 15-24 years, though the
infection rate differs from 10% in rural areas to nearly 30% in urban areas.
These high HIV infection rates in women of
childbearing age indicate equally high or higher rates in the general
population aged 15-49. Given that there is about 30% risk of mother-to-child
transmission, the high infection rates of HIV in women of childbearing age
suggest that many children are born HIV infected.
The majority of the population of Malawi is
children aged 0-14 years. These account for about 47% of total population.
According to estimates, only 1.2% of them are HIV positive. However, as they
reach puberty and start engaging in sex, they become very vulnerable to HIV
infection.
With an adult prevalence rate of around 14%,
Malawi is typical of many resource-constrained African countries that have
been severely affected by the epidemic. WHO has estimated, that fewer than
half of Malawi’s residents have access to essential drugs of any kind.
The health care services are over-stretched
particularly from the increasing number of HIV related diseases like
tuberculosis. Cases of tuberculosis have been quadrupling over the past 10
years. There is also a rise in drug-resistant tuberculosis, which is difficult
and expensive to cure.
Most of the opportunistic infections could be
treated or prevented with relatively cheap drugs. However, in Malawi, even
cheap drugs for opportunistic infections are not always available.
Antiretroviral drugs have prolonged life for many
people with AIDS in richer countries, but they are too expensive for the vast
majority of people living with HIV.
Traditional medicine practiced by a reputable
healer can be very effective in relieving some of the symptoms of
opportunistic infections, but, despite the fact some healers claim they have a
cure for AIDS, no drug or herbal or other treatment cure the disease.
Health care expenditures in Malawi are believed
to have risen by 50% since the epidemic began and people with HIV may occupy
over 70% of the hospital beds in the country.
It can cost up to 50,000 Kwacha to take care of
someone with AIDS – four year’s income for the average Malawian. Due to
the lack of money in the public health service, individuals and their families
meet most of the costs. When people cannot afford hospital user fees, they
stay and die at home. There the responsibility for care usually falls on
women, with men either unwilling to help or prevented from helping by women
unwilling to share the burden.
The
highest rate of HIV prevalence in Malawi is found in the Southern Region and
after that come the Central Region and last the Northern Region. In Southern
Region urbanisation, transportation and migration are greatest. Studies
suggest education status, particularly among males, is positively associated
with HIV status. Professionals, skilled workers (including teachers) and the
armed forces have higher rates of HIV than farmers, villagers and housewives.
Another
striking difference in HIV rates is the urban /rural difference. The HIV rates
are much higher in urban as opposed to rural sites. However, because the
majority of Malawians live in rural areas, the absolute number of HIV positive
people is higher in rural compared to urban areas.
The virus is most widespread in urban cities:
Lilongwe (L), Blantyre (B) and Mzuzu (M) and in some semi-urban areas
especially along the lakeshore area. There at least one in four pregnant women
is HIV-positive and similar numbers of men have the virus. In rural areas,
about one in nine people have the virus.
In the new millennium, Malawi will combat HIV/AIDS with
renewed hope and vigour. The national response calls upon all Malawians to
take responsibility for action against HIV/AIDS through their families,
communities, civic organisations, places of work and their own individual
efforts. Collective action by all Malawians is required if the scourge of
HIV/AIDS is to be reduced and eliminated.
One of the best ways of combating denial is to give AIDS
“a human face” through what is called the Greater Involvement of People
living with HIV/AIDS (GIPA).
Malawi together with Zambia was the first country in the
world to take part in a GIPA project started by UNAIDS and the United Nations
Volunteers (UNV) that recruits openly HIV-positive people and places them
within a host institution, which could be an NGO, a government department, or
a private company.
In addition to performing regular jobs, their mission is
to make HIV/AIDS visible through personal testimony and positive example –
using sensitivity training, prevention campaigns, and workplace counselling to
bring AIDS into the open and encourage an effective and humane response by
governments and civil society.
For the future Malawi has a National HIV/AIDS Strategic
Framework to guide the government itself and other institutions in HIV/AIDS
prevention.
The current National HIV/AIDS Strategic Framework
is intended to stimulate an expanded, multi-sectoral response to the epidemic
in Malawi during this plan period. It sets out guidelines, strategies,
objectives and broad activities that need to be followed.
It provides a common national vision for
interventions in the HIV/AIDS area. It ends up, complete, with broadly stated
behavioural and performance indicators, that should guide implementers.
The overall goal of the Framework is to “Reduce
incidence of HIV and other sexually transmitted infections and improve the
quality of life of those infected and affected by HIV/AIDS”. The success of
the framework depends on the commitment of all stakeholders, interest groups
and the response of individuals, families, communities and institutions.
The Strategic Framework for the National Response
to HIV/AIDS sets a common vision for all Malawians for dealing with the
HIV/AIDS epidemic. It creates an opportunity for partnership among the people
in Malawi in responding to HIV/AIDS. Individuals, communities and institutions
must work together and complement each other in HIV prevention and mitigation
efforts.
The HIV crisis will not go away in the near future, even if
we take drastic steps. However, what we can do is to change the current course
of the epidemic.
Recent projections from the National AIDS Control Programme
indicate that if the current trends of the epidemic continue, the number of
Malawians living with HIV is likely to increase to more than a million over
the next year, unless we take timely and concerted actions.
The same projections also estimate that:
By the year 2005 over,
125,000 under five year old children are expected to die due to AIDS as well
as 25-50% of personnel in the military, education and health care.
By the year 2010, 100,000 people will fall ill
every year, the number of AIDS orphans has tripled, 2 million Malawians have
contracted the virus and GDP will be 10% less.
In a few years of accelerated spread, AIDS has become
the leading cause of adult death in some developing countries, and may be the
most important macro-economic and social determinant of human welfare and
poverty.
In 1996, the Malawi Government, in conjunction with the
World Bank, conducted an assessment study on HIV/AIDS. The study clearly
indicated the magnitude and impact HIV/AIDS epidemic is having in terms of
increased illness, deaths and orphan-hood. Projection was that the clinical
burden of AIDS would be increasing noticeably through the next decade.
The extent of the impact of HIV/AIDS will be a function
of who and how many people are infected and how quickly this happens. It will
also be a function of existing socio-economic structures. Wherever
dysfunctionality exists, it will become worse as the epidemic deepens.
For example, if the education and health systems are
weak, they will become weaker. If professional capacity is limited, it will
become even more reduced. There will be more institutions malfunctioning, more
mistakes made, more breakdowns occurring.
Because HIV/AIDS is concentrated in prime-age adults
who are usually at the peak of their economic productivity and are often heads
of families, it has an immense impact on life expectancy, it exacerbates
inequality and increases the burden on health systems.
Discrimination against individuals with HIV – an
egregious violation of human rights – takes many forms, from losing one’s
job to being chased out of one’s home or even beaten and murdered.
Discrimination and stigmatisation also affect communities, hampering HIV
prevention by driving the problem underground and blocking access to
much-needed services. People with HIV who fear disclosure are reluctant or
unable to access help – including health care for themselves and the
information and tools needed for preventing transmission to others.
Problems children face because of HIV/AIDS begin long
before the death of a parent or a guardian. Children have to live with a sick
parent and watch the parent deteriorate and eventually die. These children
often face loss of family and identity and increased malnutrition.
When the person with AIDS is the breadwinner, their
children may suffer extreme poverty and malnutrition. They lose schooling if
there is no money to pay for uniforms or books, or because teachers are dying
and not replaced. Girls are expected to stay at home if there is no one to do
domestic chores, boys if they have to work in the fields or make money in
other ways. If their mother or both parents die, relatives who do not have the
means or the interest to take proper care of them may bring up children, or
they may be forced to live on the streets.
Thousands of children become orphans because of AIDS.
Without adequate care and support, many of these children will be
marginalized, exposed to child labour and abuse and face increased risk of
HIV. In addition, about one in three infants born to mothers with HIV
infection are infected as well, which causes AIDS due to transmission of the
virus from mother to child.
Despite the fact that HIV infection rates are highest
in urban areas, the absolute numbers of people infected and affected with HIV
and AIDS are largest in rural areas where the majority of Malawians live,
depending on subsistence farming for survival. HIV/AIDS will continue to
divert labour from farming to care provision thereby increasing food
insecurity and threatening the survival of communities.
For every person who is infected with HIV or ill with
AIDS, dozens more are affected as the virus enters their household, leaves
them orphaned, or strips them of their teachers, workers, managers, or
political leaders. Within a few short years, HIV can ravage entire communities
and undo dozens of years of human progress.
HIV/AIDS is affecting all sectors of society.
Government departments, private institutions and nongovernmental organizations
are all experiencing loss of productivity and increased costs due to
absenteeism, medical bills, funeral costs and payment of premature death
benefits. In addition to all these, it is difficult to replace highly
qualified and experienced workers. In short, HIV/AIDS threatens to wipe out
the social and economic gains Malawi has made in recent years.
According to a study initiated by USAID in 1996,
between 1995 and 2005 AIDS will have led to a staggering 14.5% decrease in
Kenya’s economic output. In other countries in sub-Saharan Africa, the
impact of AIDS has been measured using a Human Development Index (HDI) that
includes life expectancy and rates of literacy.
Because of AIDS, the HDI in Namibia is expected to
decrease by 10% by 2006, and in South Africa, it is expected to drop by 15% by
2010. Losses of this magnitude stunt the lives of individuals and are certain
to have a lasting economic impact on the development of entire nations.
Agriculture is and will be, in the near future, the
backbone of Malawi’s economy. Being a labour-intensive system of
agriculture, the HIV/AIDS epidemic therefore directly affects agricultural
productivity and the livelihood of the majority of the country’s population.
The socio-economic impacts begin as soon as a member of
the household starts to suffer from HIV-related illnesses. Loss of income of
the patient (who in most cases is the main breadwinner), household
expenditures on medicines, treatments and other care and nutrition expenses
which consume a large share of the family income increase substantially and
other members of the household, usually daughters and wives, may miss school
or work less to care for the sick person.
As families experience economic pressure to generate
cash, they often sell possessions and by the time death occurs, the family is
reduced to poverty or destitution. Removal of children from school in order to
save on educational expenses and increase household labour follows, resulting
in a severe loss of future earning potential.
When ultimately death results in: a permanent loss of
income, from less labour on the farm or from lower remittances and funereal
costs.
Even countries with relatively low HIV prevalence are
experiencing or will experience significantly increased health care costs
because of HIV/AIDS. In the public sector, health and other welfare system
expenditures are increasing dramatically.
The number of people ill with HIV-related conditions,
strain the health care systems of many nations to breaking point ill with
HIV-related conditions. In Zimbabwe, 50% of hospital inpatients have symptoms
of HIV/AIDS related illnesses. By 2005, AIDS treatment costs are expected to
account for more than a third of Ethiopia’s government health budget, more
than half of Kenya’s government health spending, and nearly two-thirds of
government health spending in Zimbabwe.
Productivity in the various sectors is also being
compromised by the replacement of experienced staff with inexperienced, poorly
qualified ones. There is also a shift of costs and care responsibilities from
health institutions to households. This has implications on access to various
medical services and the quality of care and support provided.
Obtaining sufficient food, clean water, and HIV drugs
is often a problem. Health services are poor, and communication between health
workers and patients is minimal. Prescribed drugs are frequently unavailable
or too costly, and poor stock management and record keeping means that even
essential tuberculosis and anti-fungal drugs are frequently unavailable, as
are basic prevention tools such as condoms. Health care facilities lacked
clinical guidelines and an essential drugs list. Health workers are over
burned and have little time to give to their patients.
Diseases, which were less common and more easily cured
before HIV/AIDS, are suddenly re-emerging. One such disease is TB. The number
of TB cases has grown from 5,000 in 1985 to over 20,000 at present. Many
Malawians have latent TB infection, but because they have healthy immune
systems, they are able to keep it in check. HIV weakens the immune system and
many people who have latent TB infection develop active TB, which is the
leading cause of death in Malawians with AIDS. In addition, persons with TB
can infect others, both those who are HIV positive and those who are negative.
The strain that TB and other HIV related illnesses
exert on the national health budget will grow enormously and will require
attention to be paid to alternative approaches of management such as focusing
on home based care and support.
Prevention, care, support and impact-alleviation
activities, guided by research findings, are inseparable elements of a
meaningful response to HIV/AIDS. The success of prevention depends in part on
strengthening the capacities of communities and of the health, economic,
educational, social welfare, political and other systems to meet the needs of
those who live with HIV and AIDS and those affected by HIV/AIDS.
In the context of HIV, risk is defined as the
probability that a person may acquire HIV infection. Certain behaviours
create, enhance and perpetuate such risk, for example unprotected sex with a
partner whose HIV status is unknown.
Risk arises from individuals engaging in risk-taking
behaviour for a variety of reasons. They may lack information on HIV, they may
be unable to negotiate safer sex, and they may think that HIV/AIDS affects a
different social stratum than their own, or they may not have access to
condoms.
The initial response to HIV has aimed mainly at
reduction in risk-taking behaviour through targeting individuals and groups.
Examples of such targeted interventions include the provision of information
and education, the promotion of condoms, the prevention and early treatment of
sexually transmitted diseases. It also includes needle and syringe exchange
among drug-injecting populations, and programs to enhance women’s and young
people’s capacity to demand their own protection when the balance of power
between them and their sexual partners is not in their favour. These
strategies have also aimed at increasing the safety of medical procedures,
including blood transfusion in the health-care setting.
Successes in HIV prevention using the risk-reduction
approach have been documented over the past few years. These include programs
that focus on condom promotion, voluntary counselling and testing services,
provision of information, needle and syringe exchange programs, provision of
STD diagnostic and treatment services, and prevention of mother-to-child
transmission.
In order to have a significant impact on the epidemic,
risk-reduction interventions must be rigorously designed according to the best
practises and adapted to local needs; they need to gather and share evidence
of what makes them work and how.
The approach to HIV/AIDS, however, has broadened over
the recent years to focus not only on individual risk-taking behaviour, but
also on the immediate environmental and societal factors that influence such
behaviour, and the influence exercised by
families and communities on individual behaviour. Overarching the concept of
risk and risk-taking behaviour is thus the broader concept of vulnerability
and vulnerability of certain individuals and sections of society more than
others are.
In the context of HIV/AIDS, vulnerability is influenced
by the interaction of a range of factors including:
I.
Personal factors; sexual history, availability of knowledge and skills
and access to them.
II.
Factors pertaining to the quality and coverage of services and programs
aimed at prevention, care, social support and impact-alleviation. Including
cultural inappropriateness of HIV/AIDS programs, the inaccessibility of such
services due to distance, cost and other factors and the lack of capacity of
health systems to response to a growing demand for care and support for people
with HIV/AIDS and those affected.
III.
Societal factors; cultural norms, laws or social practises and beliefs
that act as barriers to essential prevention messages.
In combination, these factors may create or exacerbate
individual vulnerability and as a result, collective vulnerability to
HIV/AIDS.
The other dimension of expanding the response that
complements risk-reduction efforts is the reduction of vulnerability. Such
efforts need to be focused first within both HIV/AIDS-specific and other
health-related programs.
Secondly, they need to be implemented within other
sectors in order to bring about a multi-sectoral approach towards harnessing
the comparative advantages of these sectors where efforts will influence the
spread of HIV.
The latter approach of engaging sectors and partners
not specific to HIV/AIDS is not entirely new to many countries. However, until
now, with the exception of some countries like Zambia, Uganda and Thailand, to
name a few prominent examples, such a broadened response has received neither
adequate attention nor resources.
Expanding the response to HIV/AIDS may follow several
routes. Few communities or nations will need to expand their response to
HIV/AIDS in all these ways at the same time. Yet moving along only one of the
pathways to the neglect of others will not be adequate for real expansion of
the response. The need to prioritise and focus action remains critical in this
effort. Over-arching these pathways are the following principles:
q
Analysing the factors that enhance vulnerability in order to
develop a focused national strategy
q
Expansion of the quality and scope of HIV/AIDS strategies
through identifying, promoting and applying best practice in short-term and
long-term risk-reduction strategies, actions, and taking them to scale
q
Enhancing the response to include those strategies that address
vulnerability through short-term and long-term measures
q
Expanding coverage by geographically and by population
q
Focusing action by directing HIV resources in the first place to
those who are most vulnerable to HIV infection
q
Expanding partnerships in the design, implementation and
evaluation of HIV/AIDS related policies and programs
q
Involving all relevant sectors
q
Increasing resources mobilized in support of HIV/AIDS prevention
and care by mobilizing and making optimal use of available and diverse human,
institutional and financial resources.
q
Enhancement of sustainability of HIV/AIDS programs over time by
strengthening local self-reliance in the design and implementation of
short-term and medium- or long-term initiatives.
So far, the AIDS epidemic has claimed the lives of
nearly 3 million children, and another 1 million are living with HIV today.
Worldwide, one out of ten who became newly infected in 1998 were a child.
Though Africa accounts for only 10% of the world’s population, to date
around nine out of ten of all HIV-infected babies have been born in that
region, largely because of high fertility rates combined with very high
infection rates.
The child can be infected either before or during
birth, but there is also a risk of transmission through breastfeeding – a
natural practice that has long been promoted as a major way of enhancing child
survival.
In some countries in southern Africa, between 20-45% of
pregnant women is HIV positive with MTCT transmission of the virus during the
pre- and post-natal periods reaching 30%.
The effects of the epidemic among young children are
serious and far-reaching. AIDS threatens to reverse years of steady progress
in child survival, and has already doubled infant mortality in the worst
affected countries.
Each year, more than 600 000 infants become
infected by HIV/AIDS, mainly in developing countries. Since the beginning of
the HIV epidemic, an estimated 5.1 million children worldwide have been
infected with HIV. Mother to child transmission is responsible for more than
90% of these infections. Two-thirds are believed to occur during pregnancy and
delivery, and about one-third through breastfeeding. As the number of women of
childbearing age infected by HIV rises, so does the number of infected
children.
Until recently, countries had only two main
strategies for limiting the numbers of HIV-infected infants:
q
Primary prevention of MTCT – taking steps to protect women of
childbearing age from becoming infected with HIV in the first place.
q
The provision of family planning services and pregnancy
termination where it is legal should be enabled in order women to avoid
unwanted births.
Today, however, there is a third option for
HIV-positive women who want to give a birth which consists of a course of
antiretroviral drugs for the mother and replacement feeding for the infant.
Introducing a strategy of antiretroviral drug use
and replacement feeding is, however, a complex process. To take advantage of
the intervention, mothers need to know that they are HIV-positive, and they
must therefore have access to voluntary counselling and testing.
Measures to reduce MTCT of HIV, especially the
administration of antiretroviral drugs and avoidance of breastfeeding, make it
virtually impossible for HIV-positive women to keep their infection a secret
from their families and people in the wider community. It is therefore
essential to the safety and acceptability of MTCT interventions that effective
steps be taken to combat rejection of people with HIV/AIDS.
The issue of replacement feeding is a complex
one. Promotion of breastfeeding as the best possible nutrition for infants has
been the cornerstone of child health and survival strategies for the past two
decades, and has played a major part in lowering infant mortality in many
parts of the world. It remains the best option for the great majority of
infants, and in providing for replacement feeding as part of the strategy to
reduce MTCT of HIV, policy-makers need to take into account the risks of
undermining breastfeeding generally, and of relaxing vital controls on the
promotion of infant formula by the industry.
The affordability of antiretroviral drugs and
replacement feeding will depend a great deal on the condition of the health
infrastructure within a country or district, and how much strengthening or
expansion of services is needed before the strategy can be introduced.
Access to ARV therapy in general is minimal and
costly for the average Malawian. ARVs
are available at QECH at the cost of K10,000 per month for dual therapy
Zidovudine and Lamivudine. ARVs purchased at private hospitals and pharmacies
are more expensive ranging from 40,000-60,000 per month.
In general, the following steps should be taken
in order to reduce mother-to-child transmission:
q
Prevent HIV infection in women of childbearing age.
The best way to prevent HIV
transmission through breastfeeding is to prevent women from becoming infected
in the first place.
q
Develop and promote voluntary and confidential counselling and
HIV testing services, which are committed to informed consent and protection
of confidentiality.
A policy on infant feeding
and HIV that is based on meeting the needs of individual mothers and infants
requires that women know their HIV status. Improving access to counselling and
testing for all women and their partners in antenatal care, family planning
and all other appropriate points in the health service is necessary in order
to implement interventions to reduce MTCT, such as infant feeding options and
antiretroviral drug treatment.
q
Strengthen antenatal care services and encourage increased
attendance
So that they can provide
information about prevention of HIV infection, HIV counselling and testing,
offer interventions to reduce MTCT, and refer HIV-positive women for infant
feeding counselling, follow-up care and social support if needed. These should
be provided in addition to the basic minimum package of antenatal care. There
few women receive antenatal care; a priority will be to increase attendance.
Gender inequality harms women’s health and prevents
many women from participating fully in society. Unequal power relations
between men and women often limit women’s control over sexual activity and
their ability to protect themselves against unwanted pregnancy and sexually
transmitted diseases, including HIV/AIDS.
Reproductive health programs can
reduce levels of STDs, including HIV/AIDS.
Reduction can happen through providing information and counselling on
critical issues such as sexuality, gender roles, power imbalances between
women and men, gender-based violence and its link to HIV transmission, and
mother-to-child transmission of HIV; distributing female and male condoms;
diagnosing and treating STDs; developing strategies for contact tracing; and
referring people infected with HIV for further services.
Primary prevention of HIV infection in women:
q
Educate the public about how to avoid HIV infection. It must not
be forgotten that the source of the woman’s infection is usually her male
partner and father of the child.
q
Develop policies and programs to reduce girls and women’s
vulnerability to HIV infection, especially their social and economic
vulnerability, through improving their status in society.
q
Target specifically the adolescent population for education
about safe and responsible sexual behaviour.
q
Ensure that couples have access to condoms so that they can act
on their knowledge of safer sex.
q
Provide information on MTCT, the importance of avoiding
infection, and the advisability of practising safe sex during pregnancy and
after giving birth as part of routine health education for men and women.
Cultural and social factors which condone risky male sexual behaviours during
the woman’s pregnancy and the early days following childbirth need to be
addressed in Information, Education and Communication (IEC) programs.
q
Provide timely diagnosis and appropriate care for sexually
transmitted diseases (STDs) including treatment for sexual partners, since
STDs increase the risk of HIV transmission.
q
Ensure that medical and surgical procedures such as injections
and operations are performed with properly sterilised instruments, and ensure
safe blood transfusion services including screening of blood transfusion.
Some countries deny the existence of taboo homosexual
practices or claim that they are a Western construct or import, despite
studies finding evidence of the extent of men having sex with men.
This type of transmission is frequently difficult to
address also because, in many countries, men who have sex with men do not view
themselves as non-heterosexual and, because of social stigmatisation, may not
wish to be identified to others as such.
Inmates are a vulnerable group for HIV infection
all over the world. Worldwide studies by UNAIDS indicate that there are high
rates of HIV in prisons. There are several factors, which put inmates at risk
of HIV infection. Sexual contact is one of the prominent factors in African
prisons since intravenous drugs are not very common. Although sex between men
is illegal in several African countries, it nevertheless takes places in
prison.
Non-existence of female presence in cells,
boredom due to lack of recreation, overcrowding in cells and sexual tension
due to long sentences are seen as reasons why inmates indulge in sex between
men.
Sex between men exists both consensual and
coerced. Overcrowding in the prisons has led to a situation where juveniles
live with adult inmates. These juveniles are victims of both forms of sex
between men. In consensual homosexuality some older inmates who have adequate
necessities like soap, sugar, salt etc lure juveniles lacking the same into
sex between men by providing them with the necessities.
Coerced sex between men is not so common but it
usually happens where juveniles live with adult inmates.
Some “chamba” (marijuana) smokers have strong sexual desires and
threaten the juveniles to have sex with them.
As a solution to this problem, both the members
of the staff and the inmates see that older prisoners should be separated from
juveniles to reduce sexual contact between them. In addition, condoms should
be promoted and distributed although there were mixed feelings about providing
condoms.
Other said that sex between men is illegal and
providing condoms would be like sanctioning the practise. Others said that
even though sex between men is illegal it nevertheless takes place without
singling out culprits hence condoms would assist in preventing HIV
transmission for such people.
Also training of inmates as AIDS educators and
isolation of HIV positive inmates were given as solutions. In addition, if
inmates are provided with adequate food, groceries and there would be
recreational facilities available it would lead to decreasing of sex between
men in prisons.
“Prisoners are the
community. They come from the community, they return to it. Protection of
prisoners is protection of our communities.”
UNAIDS
Services for prisoners as a captive population
should be equivalent to the education, treatment, care and support received by
the general population. This means providing access to HIV-related prevention
information, education, particularly ongoing peer programs, voluntary
(including anonymous) testing and counselling, and the actual means to
implement them (condoms, dental dams, water-based lubricants and bleach).
Addressing
homosexuality needs both policy formulation and administrative understanding.
AIDS interventions could provide information on risks involved in indulging in
such practices. Condom provision in Malawi Prisons is a sensitive issue, which
needs immediate policy considerations considering the high rate of sex between
men taking place in the prisons.
Studies among sex workers and bar girls – women who
live and work at the bar – show a rapid rise in HIV prevalence, reaching
about 86% in 1994. Baseline behavioural data show sex workers as mainly single
mothers. The majority of the women are between 20-29 years and are highly
mobile.
Criminal law in the area of prostitution impedes the
provision of HIV/AIDS prevention and care by driving people engaged in the
industry underground. Such laws should be reviewed with the aim to
decriminalize sex work where no victimization is involved, and regulate
occupational health and safety conditions to protect sex workers and their
clients.
Most prostitution laws are founded on nineteenth
century notions of morality and were ineffective then, as now, in suppressing
the industry while there continues to be a demand-driven market. By treating
sex work as a personal service industry which is neither condemned nor
condoned, public health objectives are much more likely to be achieved than
under the criminal law.
There are many successful programs and projects for
making sex work safe through improving conditions and/or diverting people away
from the sex industry. Economic development programs can assist sex workers or
potential workers by giving them additional sources of income, so that they
are in better position to choose safes sex, improve opportunities, and/or have
fewer clients. Alternative income-generation schemes can also enable women to
leave or be diverted from the industry.
Transmission through injecting drug use so has mainly
been a problem either in developed countries or in some developing countries
mainly in Asia and Latin America. There is mainly two reasons for the strong
existence of intravenous drugs: a strong market for drugs or a
historical/cultural background for injecting drug using.
So far injecting drug using has not been a large
problem nor has it existed on a larger scale in Africa. Nevertheless, recent
statistics show that intravenous drug using is growing rapidly in South
Africa. In addition, sub-Saharan Africa might be in danger in the future, when
the economic situation gradually gets better.
Countries, which have a harm-reduction approach, tend
to have avoided the high incidence of HIV among injecting drug users in some
other countries. This approach aims to educate users about the need for safe
injecting behaviour, and facilitate safe behaviour by providing easy access to
clean injecting equipment.
Evaluations of such programs have shown that they have
not encouraged greater use of drugs, but in fact have increased demand for
drug treatment, decreased the number of unsafely disposed of used equipment,
and helped contain the HIV/AIDS epidemic.
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